Schweizer Paraplegiker-Forschung (SPF)

Schweizer Paraplegiker-Forschung (SPF) Swiss Paraplegic Research

SPF

www.paraplegie.ch

Swiss Paraplegic Research (SPF) is a private, non-profit research organisation funded by the Swiss federal government, the Canton of Lucerne and the Swiss Paraplegic Foundation. The total staff is 50-60 researchers. It is the mission of SPR to sustainably improve the situation of people with paraplegia or tetraplegia through clinical and interdisciplinary research in the long-term. The areas that are aimed to be improved are functioning, social integration, equality of opportunity, health, self-determination and quality of life. It is the proclaimed goal of SPFto promote the study of health from a holistic point of view, by focusing on the ‘lived experience’ of persons with health conditions and their particular interaction with society. SPFtherefore established a research network for rehabilitation research from a comprehensive perspective on a national and international level. This network will make it possible to practically apply the latest research findings in order to provide the best possible care and reintegration for people with paraplegia or tetraplegia.

Dr Jerome Bickenbach (M) Professor, Department of Health Sciences and Health Policy, University of Lucerne, Swiss Paraplegic Research (SPF), Nottwil, Switzerland, and member of ICF Research Branch in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI). Head of the Disability Policy Unit responsible for research in European disability law and policy, using spinal cord injury as a case in point. Author of several books and peer-reviewed articles on a range of topics in disability studies, disability policy analysis, implementation science, and disability classification and epidemiology. Since 1995, consultant for the WHO on disability classification, survey methodology, and epidemiology.

Per von Groote (M) Research fellow and PhD candidate in Disability Policy Unit since 2007 focusing on implementation science and the implementation of international public health documents, in particular, International Perspectives on Spinal Cord Injury, a collaborative report with the WHO, for which he was an associate editor. He has acted as a consultant on human rights, democracy policy issues including disability and health related questions at the head office of the domestic policy department at the Heinrich-Böll Foundation, Berlin.